The short answer appears to be yes.**
I’ve been anosmic (no sense of smell) getting on for a couple of years now. Before that my sense of smell was intermittent to put it mildly – sometimes sharp, though mostly non existent. But to lose your sense of smell completely is a hell of a thing. Yes, it’s insignificant compared to going blind or deaf, because you can function quite normally, and the only danger in it is you might not smell the presence of life threatening things like gas or smoke. But for the sufferer, the world becomes a very bland place indeed.
Our sense of smell touches us in subtle ways, triggering memories, or adding immeasurably to life’s experience. To walk over a peaty moorland or through a rose garden and not smell it is to take away so much of what the world has to offer, disengaging you from it emotionally – because a sense of smell does connect you intimately with life – arousing you, comforting you, warning you, or even sometimes repelling you. And to take all that away? Well, you have to be without it for a while to understand what that means.
I’d reached the stage where I was thinking I was going to have to get used to it. My local GP was unable to offer me anything other than a steroid based nasal spray that made me ill. So, I decided to visit a practitioner of Traditional Chinese Medicine, who rather spookily turned out to be the spitting image of a character from one of my books* – we’ll call her Doc Lin**. I’ve had TCM before for a bout of tinnitus. That was a very positive experience and quite an education, so I wasn’t going into this blind – any skepticism I might have felt regarding TCM had already been banished during that earlier episode, some five years ago. I knew TCM worked for certain things, but would it work for anosmia?
Doc Lin reassured me that, yes, TCM could probably help – that she had helped others with anosmia and it was certainly worth a try. I’d need around 12 sessions, she reckoned, one each week. It would cost me £350 if I paid up front, then there would be herbal concoctions to pay on top – maybe another £100. Of course when you’re used to free healthcare, you balk at the cost of paying for treatment, and wonder if you’re being spun a line by someone more interested in your money than your health. So yes, it was a risk, but it’s not every day you meet a character from one of your books, so I gave the gal my card and I signed up.
The sessions involved an exam of tongue and pulse and some diagnostic questioning, then thirty minutes of acupuncture, followed by fifteen minutes of massage. I’ve also been taking a liquid mixture of Ginko Bilboa and Ginseng. I’m eight weeks in now. I’d found the sessions very relaxing, and energising, but my sense of smell had remained stubbornly absent.
Until a few days ago.
It was a jar of coffee beans. I flipped the lid off it and was overwhelmed by the scent. It came as such a revelation, I was quite emotional for a while. But alas, the experience was all too fleeting. Indeed, by the time I’d stuck my nose in the jar for another delicious whiff of it, I was back to my old anosmic self. However, these brief glimpses of a world restored to all its glorious scented completeness have been recurring with increasing frequency. I’ve smelled both strong odours, like coffee and camphor and tea-tree oil, but also what I’d describe as more delicate things like camomile tea, and toothpaste. I was also walking in the hills at the weekend and smelled the earth for the first time in years. It drew me up, and made me gasp with wonder at it.
As I write, it’s gone again, so my recovery is somewhat fragmentary and tentative but, even such as it is, I’m very grateful for it, and for once I feel I have some good news to tell Doc Lin when I next see her. I’m sure things can only improve further from here.
If you’ve lost your sense of smell, and western medicine has been unable to help you, it does seem possible that TCM, however it works, can achieve the impossible, and restore it. So don’t give up, don’t resign yourself to a textureless world. Go and talk to a practitioner of TCM.
*If you’d like to meet Doc Lin, you’ll find her in my story “Push Hands” here.
**Update July 2013. It didn’t last. It was a glorious scented interlude, but all too brief – disappearing after only a few weeks. After that I tried the ENT department of my local hospital where I was diagnosed with nasal polyps and had more luck – all be it temporarily but for much longer, with a course of antibiotics and corticosteroids. That acupuncture worked was immensely satisfying, but that it worked for so short a period, was also disappointing. See my other blogs pieces on anosmia for more updates on my intermittent journey back to a scented world.
I’m glad you weren’t afraid to try TCM and that you have had some positive results from it. The channels in your body that were blocked, preventing you from smelling, are beginning to open. Doc Lin is worth her weight in gold to you, I’ll bet.
Hi Walk2Write, yes. Glad I took the plunge. I was getting a bit worried it wasn’t going to work, but those first scents after all that time were truly wonderful. I’m looking forward to giving her the good news – I think she was begining to think I was a hopeless case as well.
Hi, just read your description of life with anosmia and cried… in three years I have smelt only twice, once for 20 minutes after a shot of Novocain at the dentist and once for 2 seconds at a perfume counter. I feel like I am living in a bubble… All those wonderful smells that I remember… how they awakened in me various emotions, as you described so well, gone… Life is very sterile now… I will try TCM and getting work done on my upper neck… Thanks for sharing your story, it helped me.
Hi Deborah, that you’ve smelled anything at all, even for so short a period is a hopeful sign, and I’m sure you’ll get it back. In the end the TCM didn’t last for me, but the experience encouraged me to go to the hospital to see if anything else could be done – I write about this in later blog articles. The treatment there lasted longer. Nowadays my sense of smell comes and goes, months about, and hopefully lasting longer each time. It’s great when it returns. I do know how you feel. You have to lose it to appreciate it.
I wish you all the best.
Regards
Michael
Hi Michael: I just read your article and was very interesting. I too have Anosmia and have tried a lot of homeopathic techniques as well as a lot of antioxidants but to no true avail. I would be interested in a follow up as far as how your TCM treatment is going, and you continuing with Dr. Lin’s treatment or if you are now able to lessen your visits, etc.
Hi Nicky, sorry to report the anosmia came back after about three weeks and refused to respond to further acupunture – I write about this in later blogs. I was eventually diagnosed with nasal polyps at my local ENT department. I had some conventional drug treatment and that worked for a couple of months, but it’s recently drifted off again, so I’m currently waiting on a return appointment for hoepfully more of the same. I should perhaps add some words to the bottom of that article to this effect.
Sorry to hear about your anosmia. The periods when when my sense of smell have come back have been like a revelation.
Regards
Michael
There is treatment in UK that works with polyps.
Thanks Ingrid, do tell us more. So far as I’m aware treatment here in the UK consists of either a dose of corticosteroids or minor surgery, both of which work but tend not to last long. In my own case the treatment from my ENT department seems to be holding up with very few Polyps remaining, though I’m having to use a daily top up dose of Flixonase, while exploring dietary adjustments, moderating things like alcohol and dairy. My sense of smell is still somewhat intermittent, but that’s a big improvement on where I was a year ago.
I had the surgery Michael and my sense of smell returned back to normal for only approx 3 months 😦 I was overjoyed then devastated! Seems this condition isnt taken as seriously as it should be! I have no sense of smell along with days of sneezing and being unable to breathe through my nose. It effects so much of my day to day goings on 😦 I try and stay as positive as possible but when Im having a bad day, its awful! Great piece and I am considering trying acupuncture, i just hope it works for me.
Hi Sarah, I think you’re very brave for going through with the surgery and I’m sorry to hear it only lasted three months – about the same as my treatment with the steroids. At the moment mine is intermittent, months about, and I’m convinced alcohol is a factor – at least for me, so I’m trying to cut it out. The sneezing does sound like a allergy to something, and it might be worth tracking it down if you can. The last time I spoke to my doctor, she said people with allergies do tend to grow polyps. Anyway, best wishes,
Michael
I noticed about 20yrs ago that alcohol took my sense of smell for about 12hrs or more,I have since discovered I have Polyps therefore no smell,about to get a repeat prescription of Flixonase Nasal drops followed by Avamys Spray,this then sorts me for a couple of Months then I go through the same Cycle again,I am going to try a Sims Salt Pipe as seen in a Welsh Paper,nothing to lose only about £25,read about it on .wwwsimssaltpipes.co.uk ,fingers crossed in hope.
Thanks very much for this. What a fascinating idea! I do recall now my father talking about the therapeutic effects reported by people working in local salt mining. I have just ordered mine. Can’t wait to try it out – as you say £25, nothing to lose. Thanks again for the hint. I’ll no doubt be blogging about it in due course.
Regards
Michael
Hi Michael, for the very first time since my accident have I noticed and finally got the courage to learn more about anosmia. My anosmia came about fainting, falling on my back and the back of my head hitting the ground so hard that I started bleeding from my left ear, creating a concussion. Fortunately, I did not have internal brain bleed or else we wouldn’t be discussing this issue.
I am fascinated to learn that it is possible to get this sense of smell back, although in bits and pieces. To me that is rewarding enough.
I have been looking at acupuncture as a mediation of my condition, however as I read more of this blog I keep reading other means to tackle this ailment. Please feel free to respond at your earliest convenience since I can see the light at the end of the tunnel…so to speak!
Bolivar
Hi Bolivar,
Sorry to hear about your accident and ensuing anosmia. Anosmia is a mystery and a tricky thing to deal with. I hesitate to say it can be cured in all circumstances – clearly it cannot. In my own case the Anosmia is the result of an unknown allergen causing inflammation of the mucus lining of the nose, which in turn leads to polyp growth. Anything that can address the allergic inflammation will have a positive effect – at least for this type of anosmia. Oral steroids are the most effective “cure”; In my case a one week dose followed up by daily use of intranasal steroid spray or drops was 100% effective, for about six months. It then became intermittent, finally failing after about a year with a return to Anosmia.
On the alternative front, six weeks of acupuncture provided a few weeks of relief, but then no amount of acupuncture was able to repeat the trick. And acupuncture in my part of the world is very expensive. The various alternative gunks I’ve used have had no effect, (I’m currently trying drops of castor oil but without success)
As of now, after some halting progress, I’m anosmic once more and contemplating requesting another dose of Oral Steroids from the doctor. These, however, have dramatic side effects – at least psychologically, and not unpleasant, but anything that makes us feel that good in the short term probably isn’t very good for us in the long term.
You don’t say how long ago your injury took place. My advice if you haven’t already done so is to speak to a doctor. One of the questions I was asked during my first consultation was if I’d suffered any injury to my head, so this will influence the outcome of the diagnosis, and point to cures or otherwise.
I do sympathise. To lose one’s sense of smell is to lose a vital connection with the world. People who do not suffer from it think it might even be a good thing, not to be subjected to powerfully bad smells, but such things the Anosmic would surely treasure. Indeed it is rarely helpful to discuss anosmia with people who do not suffer from it. Scent and the related sense of taste are vital to our enjoyment of the world, and to lose it is to feel permanently disconnected.
I wish you well,
Regards
Michael
Hi Michael, thank you once again for your input and your reply. Per your question about when did my injury happen it was in early August of 2013.
In regards to my anosmia, trust me when I say that there are many things that I feel good about not being able to smell! lol
Also, as a wine connoisseur and Jr. Sommelier I’ve had to get rid of all of my wine collection (including bottles that I’ve collected for years worth $$$). I’ve also cook a lot and I have not changed my cooking nor eating habits. My sister tells me that I should be so skinny that she doesn’t understand why that is!
I guess I have to make the best of both worlds: keeping myself positive in this world with only 3 senses left! Enough to live well.
Bolivar
Hi there,
I came across this blog/page as I was searching for whether acupuncture may help with Anosmia. I lost my sense of smell about 6 years ago – I noticed it when I couldn’t smell wine 🙂 I have tried a whole lot of things – steroids, vitamin B injections, had a scan to check for tumors (all clear thankfully) etc I am currently trying chiropratic therapy… just started.. I will let you know if this has any good effect. The ENT I saw a couple of years ago suggested to treat my deviated septum and inflamed turbinates – but he wasn’t confident this would help. Like you Michael, I wasn’t too brave about surgery which wouldn’t necessarily fix this is.
Anyway, its comforting knowing there are others out there.. I hate the loss of smell in my life and it can be embarrassing to admit to others. I am also very concerned about smelling bad and not knowing!!
Good luck to everyone. If a miracle cure is found.. please blog it!!
Hi Jasmin,
Thanks for the comment. Hopefully others will post any future suggestions, as will I. I’m still researching, and must have tried just about everything by now. At the moment I’m taking Alpha Lipoic Acid supplements -some reports on this were very encouraging. I’ve been taking it for six months now and am getting the occasional brief recovery, lasting only moments and certainly nothing you can rely on but I’m hoping it may be the start of something more permanent. I came across the idea on this blog https://nosmell.wordpress.com/2008/08/21/vitamins/. The author was a long time anosmic and reports good results with it. I thought it worth a try anyway.
Acupuncture worked really well, but only for a short time, and I’m still puzzled by that.
The only thing that’s reliably effective for me is a course of oral steroids. This brings things back to supernormal within a few days, but gradually fizzles out again after a few months. My ENT suggested a course maybe up to twice a year, but no more than that, given the dodgy nature of steroid side effects. I’ve not been tempted to repeat for something I know is only temporary – and yes I thought the surgery too invasive for something that wasn’t guaranteed to work. Pain, time off work, and all that.
Like you I also worry about smelling bad and not knowing, also not being able to smell food that’s gone off and will make me ill. The loss of smell is something others really can’t understand. I’ve even had people suggest it’s a good thing, that the only smells they ever notice are bad ones. Scent connects us to the world in so many ways, it’s just a pity we have to lose it to appreciate it.
Fingers crossed then for a miracle cure.
But do check out that website. The Alpha Lipoic Acid doesn’t seem to have produced any dramatic results for me just yet – only tantalising hints – but you may have better luck with it.
Regards
Michael
Hi Michael
Just came across your blog while checking the internet for the effectiveness of accupuncture on anosmia. My symtoms and experiences seem to be identical to yours. I am 54 and have had issues for about 8 years. 4 years ago I had surgery to remove polyps and clear my nasal passages and had about 12 months of relief before my smell disappeared again. Since then I have been using a steroid nasal spray with brief limited results and am currently taking a herbal “Sinuswars” tablet that I puchased over the internet but with no positive result as yet. Like you, I also believe that alcohol, while maybe not being the cause of my anosmia, does have a negative affect on my smell. Being a long term sufferer of this condition, it is comforting and encouraging to read your blog and know there are others out there like myself.
Hi,I am G.H.Naidu,suffering with Anosmia since 30 days,Know I am with ora l steroids since 2 days,than I will try with acupuncture,than Iwill go for Kerala Ayurveda,before that I will try with Alpha lipoic acid suppliments ,I will blog the final result.
Hi Michael:
Thank you for your blog. I was trying to see if there was any success with Acupuncture for Anosmia. I have had Anosmia for about 2 years. Finally went to an Ear Nose and Throat Doctor to look for growths. I have no sinus headaches or pressure. Doctor did not find any abnormalities in my nose or in subsequent x-ray. He found some inflammation in my nose and suggested Flonase nasal spray, which is not appealing to me, but I will try it. By the way, I have not had a drink since 1978, have not suffered any head trauma. The weird experience I have had was going to a botanical garden for the lilacs last spring but the scent was received by me as a weird funky, metallic smell-not at all pleasant. I was heartbroken. Also had the same experience when a heavily perfumed woman walked near me. YUCK! Doctor’s last option was neurological exam and MRI suggesting the problem might be in the nerve sensors that receive the scent. Have you seen recent news reports that loss of smell may be an early predictor of Alzheimer’s? Freaked me out! My mother evidenced signs of Alzheimer’s at 70 (my age now) before succumbing at 85. (A long good-bye) Also heard some think we may be able to retrain our sent receptors by inhaling various scents. Thanks again.
Hi Sandra,
Yes, I’ve had periods where things smell weird, also things that aren’t there. My own take on this is that the nerves in the nasal membrane become stretched as a result of the inflammation, so they send distorted signals or the signals don’t get through at all. Sorry to hear about your mum. I have read those reports about Alzheimers but try not to pay much attention to them – so many things are supposed to be a precursor it’s easy to frighten ourselves needlessly. The acupuncture worked but only briefly for me. Alpha Lipoic Acid has proved to be successful though. I’ve written about it on the blog and can recommend it.
Wishing y0u all the best
Regards
Michael
Thank you for your kind words. I’ll definitely try the Alpha Lipoic Acid. All the best to you.
I am suffering with ANOSMIA since 70 days, I’ll try with Auyurvedic treatment Called NASYA, then I will try with Accupuncture, now for the moment I am taking chicken liver 250 grams every Sunday, I’m taking SPINACH soup daily with tomato and garlic pieces, I am taking alpha lipoic acid tablets & zinc tablets, after Auyurvedic treatment and Accupuncture I will send d feedback.
Hi Michael
I have had the same experiences as you since I was 20 years old. I’m now 65. I’ve had 3 polyp surgeries – 1 in UK and 2 in USA. Like you, its successful for a while then fades away especially if I get a cold. At Christmas I had a cold and took cold/flu tablets containing Paracetamol, Phenylehrine and Guifenesin. My smell and taste came back so clear and lasted a couple of weeks until I got a sore throat and it gradually faded again. I find I have to be completely healthy in my sinuses for Flixonase to work. Betnesol works well but only while I’m taking it. I do think alcohol and spicy foods inflame the membrane but when you do get your smell back it’s a shame not to taste these things. Staying cold free definitely makes my smell and taste last longer. It would seem we need anti inflammatory meds all the time. It’s such a joy when smell and taste returns. Good luck and let me know if you have success with anything new.
Hi Corina,
Have you tried alpha lipoic acid?
Regards
Michael
I’ll give it a try and let you know. Thanks
Hello Michael. You mention Alpha Lipoic acid. What is the dosage you are taking and how many times a day. Thank you for your reply.
Hi Sherrill, to begin I took 250mg twice a day, morning and evening, for a year, then as my sense of smell became more reliable I cut that back to 250mg only in the morning.
Hi Michael,
I’ve had anosmia for over twelve years now. I had two sinus surgeries done to remove nasal polyps within the past five years and it made breathing a whole lot easier, but the sense of smell never really came back permanently. Been seeing the ENT once a month with the same infection in my nostril which I would take antibiotics for, but don’t really want to continue using this. Prednisone (oral steroids) usually helped a little for a short period, but the last bout of prednisone made no difference with anosmia. Similar to taking antibiotics, I don’t really want to continue using steroids. Been adding Pulmicort (50mg ampule) with my nasal rinse twice a day, which helps keep my nasal passages clean, but still the infection is there every month when I’m at the ENT for a check-up.
I’ve been reading your blog and following the steps you took to help with anosmia, so I’ve been doing acupuncture once a week for the past five weeks and have started taking Alpha Lipoic Acid supplements (600mg twice a day) for the past five weeks as well. Acupuncture cost is starting to add up, so not sure if that’s the route I want to keep going while taking ALA is a little more feasible. Do you know of any other suggestions I can try or am I just being too impatient with the above approach?
I think with the acupuncture if you’ve seen no improvement after 10 sessions, it’s probably not going to work. I had some temporsry success with it initially, but like you I felt the costs mounting. The ALA did take time – six months I think before I experienced any improvement. It does take patience.
Thanks, Michael! I will continue to be patient and hope for any sort of improvement.
After 40 years of struggling with loss of smell and taste usually following a cold I finally seem to have it under control. I am using Mometasone Furoate nasal spray and have had my sense of smell and taste back for 2 years now. Any sinus infection needs to be cleared first and make sure you don’t have any polyps. I am in the U.K.
Hi Michael. I tend to send patients away if they have seen no improvement after 3 sessions. That is probably premature, but I find it too embarrassing to ask them to have faith when costs are mounting.
Thank you for this. I wish I lived nearer. I would have been sure to consult you. I found the mounting cost was a concern with the treatment, and hard to explain to others who were not so favourably inclined towards it.
Hi Michael, I’m so pleased you found something that works for you. I guess you are familiar with this paper on ALA : https://pubmed.ncbi.nlm.nih.gov/12439184/ Oddly enough, the author seems to be the same Hummel who also did some acupuncture research on smell disorders. Yes you are right, those points around the nose are quite sensitive with needles, and I never really found a way to make them less so. It might be worth investigating whether acupressure on those points for a few days might help to optimise and stabilise the effect of ALA. I hesitated before making the video because I didn’t want to give the probably false impression that pressing those points alone is likely to produce dramatic effects, even though there is a famous case in which that is exactly what happened, but for most folks the road is longer and rockier. All the best, Kayvan.
Thank you, Kayvan. Yes, that was the study I read which gave me confidence to commit to the ALA. I still find exposure to certain allergens or pollutants will cause my sinuses to swell – wood smoke is a particular problem – with subsequent (temporary) loss of smell – though it might take weeks to recover. I shall remember to try acupressure on those points the next time it happens.
I don’t know if you found a solution for your anosmia in the end. I hope you did, and if I were you I would be very shy of trying or trusting acupuncture again, but in case it is of any interest to you, or any use to your readers, I compiled a fairly extensive review of all of the available research in English, with translations from the Chinese, and folks can make up their own minds about whether it is worth trying. The single most useful research paper is a German one from 2010, which found that 50% of patients got statistically significant results after 10 treatments. Here is the link:
https://blue-dragon-acupuncture.com/can-acupuncture-restore-my-sense-of-smell/
Best wishes, Kayvan
I did find a solution – I believe – in Alpha Lipoic Acid supplements. The sense of smell isn’t always stable and will fade in and out from time to time, but I’m generally happy with it – happier than the thought of a lifetime on steroid nose sprays, which was the best the ENT people could offer.
Thank you for that review. It was very interesting. The pressure points you indicate in the video, I do remember being needled in those. It required a great deal of willed relaxation, otherwise it hurt. I shall experiment with the acupressure. My overall experience with acupuncture was always positive and, regardless of what the treatment was for, I always left those sessions feeling relaxed and energised.
Thank you again.
Thanks for your posts, Michael. I have been suffering with anosmia and food has no flavor. I love food and cooking and this has saddened me terribly. ENT diagnosed polyps almost four years ago. I have tried all manner of medical treatments all steroid based – from nasal sprays, single-dose nasal drops, oral tablets and injection, none of which helped with the anosmia. I also, finally, agreed to a one-month course of antibiotics – also to no avail. So, in May of 2017 I underwent sinus surgery to remove polyps. A month and a half after surgery I began to smell and taste again. I was thrilled but it only lasted two months and I am back to my state of no taste or smell for months at a time then a short reprieve (I absolutely understand when you say you are grateful at these times. I am so grateful when I am better and I eat and smell everything I possibly can knowing it will begin to fade and disappear again at any time). My last visit with the ENT resulted in a prescription for yet another steroid spray. I didn’t fill it. I am through with steroid sprays. I had had some luck with Reishi mushrooms together with Schuessler salts (number 8) a year ago. It seemd to work for a while (or maybe it was coincidence but my taste and smell returned while taking them) but then it stopped working. I am going to try this combination again. I had also seen a homeopath who recommended eliminating all milk protein, pork and sugar. I did not follow through, but I may have to go ahead and try to do this to see if there is any improvement. Will keep reading any new comments. I will also look into alpha lipoic acid as you mention above. Are you still finding that it helps?
Hi Maria, your story with the ENT sounds all too familiar. Interesting to learn about the mushrooms – I’d not come across that one. I did cut down on sugar a lot, also milk (especially powdered) as I thought it was increasing a tendency towards congestion with the additional risk of infection. I think that worked, and I’m still fairly clear. I’m still taking the lipoic acid, sense of smell reasonably intact, most of the time still, though I can kill it for a few days at a time after drinking alcohol – say a few glasses of wine.
All the best, and thanks for sharing your experience here.
I just came across this blog and it’s really the first hopeful words I’ve had. I lost my sense of smell about 4 months ago after a really nasty cold/virus. My Doctor sent me for an MRI, neurology exam and then to meet with the ENT. I was told that there really isn’t anything I can do so sadly I’ve come to accept that I may not be able to smell again. However, having read these posts I think I may try Acupuncture and possibly the Alpha Lipoic Acid.
I will post again with an update. Fingers crossed!
MIne was a similar experience, Kathryn. I hope things go well for you. The acupuncture provided a temporary return after about 5 sessions for me, but then declined again. The ALA worked long term but took six months to show any improvement.